Morning coffee in my cowboy cup |
This week saw a five-day course of chemo again which passed
with no particular ill effects, and an increased dosage of anti-seizure meds.
I’ve continued to get something called focal seizures—an ants-under-the-skin
sensation in the left side of my face, which can develop into a throbbing in my
neck and arm.
One evening on another drug, to be taken in the event of a stronger seizure, I
was knocked out so totally that I woke from the effects hours later with no
memory of how I happened to be in bed, where my wife found me to remind me to
take my chemo meds. I still have no memory. It was not a faint, but a complete
blackout. Yikes.
Otherwise, the week saw me out walking in the mornings for
30 to 40 minutes, once with just the dog for company, and I stopped using the
walker, relying on a walking stick for support. While my wife also reminds
me that it is rattlesnake season, I ventured a ways into the desert, where I
found another dog-walking friend from the neighborhood, and we were able to
catch up on a lot of news.
Morning moon |
My weight continues to jump under the effects of the
steroids I’m taking to counter the swelling in my brain from radiation. At
under 160 pounds when I left the hospital four months ago, I tipped the scales this
week at 181.6, an increase of well over 20 pounds, and this despite the fact
that food for me has basically no taste.
I saw the Cancer Center psychologist again this week, for an
hour. She put me onto Dr. Jon Kabat-Zinn, who is an articulate advocate of
mindfulness meditation, with numerous videos at YouTube. Yesterday I spent an
hour with his talk to a room full of Google employees, taking them through a
guided meditation that made the practice more accessible and less confusing for
me.
His notion of “mind” as incorporating brain, emotions and
body helps clarify a process I have little understanding of and dismisses the
handy mechanistic notions I bring to expectations about cause-and-effect
treatment of illness. There is science supporting some of its claims, but the
claims themselves exist on a plane where reason and faith converge—not familiar
territory for me. Here is the talk, well worth the time it takes to listen and
let it soak in.
Kabat-Zinn encourages me to begin with 20 to 30 minutes of
meditation every day to “tune up” like a symphony orchestra about to play
Beethoven. Even the finest musicians will produce cacophony without it, he points out and, extending the metaphor, our days will be no different.
Meanwhile, heat and wind return to the desert this week, and
the one thing to be thankful for is that Saturday was the first day of summer. The days will be shortening in small increments until
they eventually add up to winter solstice, and if we’re lucky we will be
complaining about the “cold.”
The week was also marked by my effort to clear off a shelf
in a closet, with two plastic bags mostly full of stuff that got taken away
by the trash truck on Friday—old VHS tapes, old ball caps, etc. (I'm a pack rat.) Not much, but a
start on minimalizing, as my wife has begun calling it.
I’m behind reviewing books for my blog and spend more time
just enjoying reading though the teacher in me is still wanting to share
what I’m learning—so I know they’ll eventually get written up and posted. I’m too
much like Chaucer’s scholar, who would gladly learn and gladly teach.
Sunset and clouds |
I have stopped watching western movies and have begun
listening to the radio series of Gunsmoke,
which ran during most of the 1950s, when I was a boy. Its 400+ weekly episodes are available at
Internet Archive. I am taken by the artistry of these productions, which I
totally took for granted back then—the excellent writing and storytelling and
the creative way they were staged by actors and sound effects for the theater
of the listener’s imagination.
Listening to them now triggers some nostalgia, and connects
me again to a time and place on the Nebraska plains decades ago, a starting
point on this journey, if I care to see it so. However, mindfulness would have
me be here now, and so the past reminds me that it was once now, too. I’ll
probably puzzle over that for a while until it finally yields to the question, “Who
am I?” For which the mindfulness answer is “Don’t know.” (Listen to Kabat-Zinn
above if the convergence of that question and answer intrigues you.)
Previoiusly: Bump in the road
My wife's current chemo requires steroids, and she's really hating the weight gain. She's been off and on (mostly on) chemo for seven years now, and food has very little taste. Some has a bit more, some has none, and nothing tastes "normal." Enjoyment of food is meaningless to her, yet she's gaining weight. She really hates that.
ReplyDeleteTell her she has my complete sympathy.
DeleteRon, thank you for writing about Dr. Jon Kabat-Zinn. I did not know about him. I was advised to meditate five to 10 minutes each in the morning and evening, to begin with, and then gradually increase it to half an hour or whatever suited me till my mind and body got used to it. I've stuck with 10 minutes. The question "Who am I?" is a conundrum. While seers insist that the solution to all our life's posers lies in our finding the answer to that one question, they don't exactly tell us how to get there. Good luck, Ron.
ReplyDeleteI really liked the show Gunsmoke so I should give a listen to some of those radio shows.
ReplyDeleteI remember the radio show Gunsmoke - Mom's favorite. She imagined the actor very handsome, which he was not. So, when the TV show Gunsmoke began with James Arness in the lead, he satisfied her imagined hero, and it became her favorite TV show for the entirety of its run - which was pretty long. Sorry about your weight gain - but you will lose it when you stop the steroids. Just think, if you were lifting weights, you'd bulk up like Arnold.
ReplyDeleteI can't even begin to imagine blacking out for hours with no recall as to what happened.
ReplyDeleteOnce again, thanks everybody for dropping by and leaving a word before you go. Means the world.
ReplyDeleteSorry to be late checking in this week but Megan was here. And I am in a bit of a funk about my book deal being cancelled. It puts me back in the situation of knowing i should try harder but not wanting to. I have tried to meditate from time to time but like my problems with sleep I lack being able to shut off my brain.
ReplyDelete